Bridging the communicative gap between a person with dementia and caregivers. A nursing perspective
Author
Summary, in English
The life of the people with dementia changed during the course of the dementia and in various ways they struggled to preserve a sense of self in relation to themselves and to others and recreated meaning and identity in their lives. Responsibilities were redistributed with the healthy spouse taking over mutual activities. The nurse-patient encounters demonstrated mutuality and acting at the same pace and unilaterality and acting out of pace with each other. In the reflective discussions nurses spoke about either confirming or threatening the nurse's and/or patient's identity and integrity. Patients experienced as vocally disruptive were more often described as introverted, rigid and with a tendency to control emotions prior to the disease as remembered by a next of kin than those not vocally active. The agreement between self-rating scores and the ratings made by a next of kin in measuring personality and sense of coherence was high or moderate. However information given by a spouse about the meaning of having a dementia disease did not fully agree with the sick partners understanding of it. The findings in the thesis may form a basis for the development of models with various kinds of knowledge framing the foundation for care for people with a dementia disease.
Department/s
Publishing year
2000
Language
English
Publication/Series
Bulletin from the Centre of Caring Sciences and Department of Psychogeriatrics, Department of Clinical Neuroscience, Lund University, Sweden
Document type
Dissertation
Publisher
Centre of Caring Sciences, P.O.B. 198, Se-221 00 Lund, Sweden
Topic
- Nursing
Keywords
- personality
- needs assessement
- life history
- Nursing care
- dementia
- Psychiatry
- family
- clinical psychology
- klinisk psykologi
- Psykiatri
- psykosomatik
- sense of coherence
- psychosomatics
Status
Published
Supervisor
- [unknown] [unknown]
ISBN/ISSN/Other
- ISSN: 1404-0123
- ISBN: 91-628-3968-3
- ISRN: LUMEDW/MEVV-1003-SE
Defence date
19 January 2000
Defence time
10:15
Defence place
N/A
Opponent
- Kenneth Asplund (Docent)