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Development and Validation of a Questionnaire to Measure Patient's Experiences of Health Care in Pulmonary Arterial Hypertension Outpatient Clinics

På svenska

Author

  • Nana Waldréus
  • Tiny Jaarsma
  • Bodil Ivarsson
  • Anna Strömberg
  • Kristofer Årestedt
  • Barbro Kjellström

Summary, in English

Background: Measuring the patients’ experience of care at an outpatient clinic can provide feedback about the quality of health care and if needed, can be support for quality improvements. To date, there is no patient reported experience measurement (PREM) developed targeting patients at the pulmonary arterial hypertension (PAH) outpatient clinics. Therefore, the aim was to develop and evaluate the psychometric properties of a PREM scale to be used for patients at PAH-outpatient clinics. Methods: The development and psychometric evaluation of the PREM for patients at PAH outpatient clinics followed two stages: (I) development of the PAH Clinic PREM (PAHC-PREM) scale based on interviews with patients; and (II) psychometric evaluation of the PAHC-PREM scale including data quality, factor structure (construct validity), criterion validity and internal consistency. Results: A sample of 156 patients at PAH outpatient clinics completed the PAHC-PREM scale (median age 69 years, 57% women). Unidimensionality of the PAHC-PREM scale was supported by parallel analysis. A single factor explained 67% of the variance. Inter-item and item-total correlations were satisfactory (0.46–0.88 and 0.64–0.91, respectively). Internal consistency reliability with ordinal coefficient alpha was good (0.93). Conclusions: The PAHC-PREM scale was demonstrated to have good psychometric properties and is now ready to be used to measure quality of health care experience from patients at PAH-outpatient clinics.

Publishing year

2019

Language

English

Pages

1074-1081

Publication/Series

Heart Lung and Circulation

Volume

28

Issue

7

Document type

Journal article

Publisher

Elsevier

Topic

  • Respiratory Medicine and Allergy
  • Cardiac and Cardiovascular Systems

Keywords

  • Chronic disease
  • Patient reported experience measurement
  • Pulmonary arterial hypertension
  • Quality of health care

Status

Published

Research group

  • Cardiopulmonary disease - information, support and reception

ISBN/ISSN/Other

  • ISSN: 1443-9506