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Increased burden on caregivers of having a child with haemophilia complicated by inhibitors.

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Author

Summary, in English

Having a child with a chronic disease often increases the burden in the family with more hospital visits, treatment administration, and increased worries for the ill child. A cross-sectional, international, multi-centre study in caregivers of children <18 years with haemophilia and inhibitor was performed at Haemophilia Treatment Centres in Sweden, UK, and Canada to evaluate caregivers' burden and their health-related quality of life (HRQoL) compared to that of caregivers of children on prophylaxis without inhibitors and caregivers of healthy children.

Publishing year

2013-11-26

Language

English

Publication/Series

Pediatric Blood & Cancer

Document type

Journal article

Publisher

John Wiley & Sons Inc.

Topic

  • Pediatrics

Status

Published

Research group

  • Clinical Coagulation, Malmö
  • Geriatric Medicine
  • Paediatric Haematology Research Unit

ISBN/ISSN/Other

  • ISSN: 1545-5017