The browser you are using is not supported by this website. All versions of Internet Explorer are no longer supported, either by us or Microsoft (read more here: https://www.microsoft.com/en-us/microsoft-365/windows/end-of-ie-support).

Please use a modern browser to fully experience our website, such as the newest versions of Edge, Chrome, Firefox or Safari etc.

The experiences of treatment from other people as narrated by people with moderate or severe traumatic brain injury and their close relatives

På svenska

Author

Summary, in English

Purpose. The aim of this study was to describe the treatment from other people as experienced by people with moderate or severe traumatic brain injury (TBI) and their close relatives. Method. Twelve people with moderate or severe TBI and eight of their close relatives were interviewed. The interviews were analysed using thematic content analysis. Results. The results were described by the means of two themes: being excluded and missing confirmation. People with TBI and their close relatives had experiences of being avoided, being ruled by the authorities, being met with distrustfulness and being misjudged. They also searched for answers and longed for the right kind of help. People who listened to them, believed them and tried to understand and help them were appreciated. Conclusions. This study showed a lack of treatment which promotes well-being of the people with TBI and their close relatives. They experienced bad treatment also from authorities. Therefore, we emphasize that authorities should continuously reflect on how to make their practice a place which promotes dignity. Treatment of people with TBI and close relatives may be improved by increased knowledge about TBI, living with it and being a close relative to a person with TBI. This is a challenge to health care and rehabilitation professionals.

Department/s

Publishing year

2007

Language

English

Pages

1535-1543

Publication/Series

Disability and Rehabilitation

Volume

29

Issue

19

Document type

Journal article

Publisher

Taylor & Francis

Topic

  • Other Medical Sciences not elsewhere specified

Keywords

  • experiences
  • treatment
  • relatives
  • brain injury
  • traumatic
  • interviews

Status

Published

ISBN/ISSN/Other

  • ISSN: 0963-8288