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Adolescents' lived experience of epilepsy

På svenska

Author

Summary, in English

To improve the well-being of adolescents with epilepsy, research is needed on how adolescents cope. In this study, Lazarus' model of stress and coping and Antonovsky's Theory of Sense of Coherence were used as the theoretical framework. The aim was to describe the lived experience of adolescents with epilepsy and their coping skills. The participants were 13-19 years old with an epilepsy diagnosis but without mental retardation or cerebral palsy. The study was performed in southern Sweden at the pediatric department of a university hospital. Semistructured and open-ended interviews were conducted with 13 adolescents. The transcripts were analyzed with manifest and latent content analysis. All the adolescents had developed strategies to cope with the emotional strains caused by epilepsy. They experienced strains from the seizures, limitation of leisure activities, side effects of medication, and feelings of being different. The coping strategies described were finding support, being in control, and experimenting.

Publishing year

2003

Language

English

Pages

9-40

Publication/Series

Journal of Neuroscience Nursing

Volume

35

Issue

1

Document type

Journal article

Publisher

Lippincott Williams & Wilkins

Topic

  • Pediatrics

Status

Published

Research group

  • Family Medicine and Clinical Epidemiology
  • Integrative Health Research

ISBN/ISSN/Other

  • ISSN: 0888-0395