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Clinical experiments for Huntington's disease : Recommendations to medical researchers regarding how to inform potential participants

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Author

Summary, in English

Huntington's disease (HD) is a severe, genetic brain disorder that causes great suffering and leads to an early death. The medical research team in the project Treatments of the Future at Lund University aims to develop a new molecular gene therapeutic method that will give the possibility to cure the disease. The authors’, social- and cultural scientists, mission is to develop recommendations for how information should be designed to potential research subjects in an experimental gene therapy study regarding HD. More specifically, to find and recommend a model that makes it possible for individuals who are affected by HD to decide if they want to participate as research subjects in the clinical trials within Treatments of the Future.

Department/s

Publishing year

2016-04-27

Language

English

Pages

1-33

Publication/Series

Working Paper in Medical Humanities

Volume

2

Document type

Working paper

Publisher

Lund University Libraries

Topic

  • Neurosciences
  • Ethnology

Status

Published

Research group

  • The Cultural Studies Group of Neuroscience